Mitochondrial Disease

#seyliech #blowiews #aw jaan #95 leo #im ringo #rote #ye gads #bonus tbt #kootneys #j e b

Webcam Model(Alina_Vibe_Me) is live
LIVE
By the end of yesterday’s two hour shoot the muscle weakness I suffer from was manifesting cle

Link #self portrait #portrait #feeding tube #cripple punk #disabled #disability #lactic acidosis #lactic acid #mitochondria #tattoos #non binary #gender fluid #mitochondrial myopathy #mitochondrial disease #muscular dystrophy #muscles #muscular #dysfunction

It’s been a year since the surgery to place this feeding tube. To the day. Originally there were pro

Link #anniversary #1year #one year #starvation #self-portraiture #self portrait #feeding tube #portraiture #disability #disabled #peg j #enteral nutrition #enteral feeding #ehlers danlos syndrome #mitochondrial disease #mitochondrial myopathy #gastroparesis #intestinal dysmotility #intestinal failure #non binary #gender fluid #tom boy #survival #surviving #do not call me a warrior #i have not seen war

Exhausted, always. {please don’t remove my words}

Link #exhausted #hospitalsnaps #cripple punk #wheelchair #pajamas #sleep study #hospital #non binary #gender fluid #bendy #ehlers danlos syndrome #mitochondrial myopathy #mitochondrial disease #gastroparesis #fatigue

Still life. {please don’t remove my words}

Link #still life #feeding tube #enteral nutrition #spilling light #medaesthetic #bed views #its night time yes #electrolytes #fluids #look up #from my bed #this is real life #disability #gastroparesis #ehlers danlos syndrome #mitochondrial myopathy #mitochondrial disease #dysautonomia #postural orthostatic tachycardia syndrome #orthostatic intolerance #hypotension

I’ve spent so much of my time since my arterial rupture, neck deep in the medical system; bare

Link #wheelchair #quality of life #spring #new year #fashion #wheelchairlife #ehlers danlos syndrome #mitochondrial disease #mitochondrial myopathy #neuromuscular #secret cats #wheelchair user #medical system #medical complex #medical #disability #disabled #lantern #lights #granville island #degeneration #progression #picking myself up #bouncing back #i am me #non binary

Being a creep in cool alley ways in the pouring rain. {please don’t remove my words}

Link #cripple punk #future punk #wheelchair fashion #disabled fashion #future fashion #wheelchair user #railspur alley #granville island #vancouver #british columbia #giant hood #hardboiled #cyberpunk #science fiction #apocalyptic daydreaming #apocalyptic #apocalypse #post apocalyptic #fashion #futuristic #cpunk #wheelchair #ehlers danlos syndrome #mitochondrial myopathy #mitochondrial disease #muscular dystrophy #puddles #street fashion #alley #non binary

Oh, What a night {please don’t remove my words}

Link #polysomnography #sleep study #medicalsnaps #medaesthetic #wires #sleep lab #short hair #not so bad #sleep #myoclonus #myoclonic jerks #disrupted sleep #hyponea #ehlers danlos syndrome #mitochondrial disease #mitochondrial myopathy #muscular dystrophy #non binary #nonbinary #genderfluid #gender fluid #hospital #mystery #electrodes

Spotted this scary looking shark friend out at sea while on an adventure with M at the weekend. 2016

Link #disability #say the word #disabled #accessibility #wheelchair accessible #accessible tourism #accessible #vancouver #tourism #wheelchair hiking #hiking #beach #wheelchair #views #shark ship #shark #at sea #scope #jericho beach #physical disability #cripple punk #winter #ehlers danlos syndrome #mitochondrial disease #mitochondrial myopathy #myopathy #muscular dystrophy

Spotted this scary looking shark friend out at sea while on an adventure with M at the weekend. 2016

Link #disability #say the word #disabled #accessibility #wheelchair accessible #accessible tourism #accessible #vancouver #tourism #wheelchair hiking #hiking #beach #wheelchair #views #shark ship #shark #at sea #scope #jericho beach #physical disability #cripple punk #winter #ehlers danlos syndrome #mitochondrial disease #mitochondrial myopathy #myopathy #muscular dystrophy

Several times on this blog—particularly as my weekdaily posting schedule slackened in 2016 and 2017

Link #the daily bestiary #pathfinder #pathfinder 2e #dungeons dragons #dungeons and dragons #mitochondrial disease